Holy Crap did I get hit hard with a case of the yuckies!!! Little man Peyton had it last week but thank God Kendall and McKayla escaped it....so far. The kiddos are with their dad while I am recovering...man I miss them like crazy.
I called the Chiari Institute today to see if they received all the info that I sent last week and to give them an update.
Kendall has experienced 2 new symptoms over the last few days. Thursday night she was complaining of tingling in her left arm. She said it kept falling asleep on her and she wasn't even laying on it :( Then her dad called me to tell me she was complaining that her neck was hurting her. Ugh. My poor baby. I am hoping the institute calls me back today just for piece of mind. The sooner we get her there the sooner this will all have some meaning and hopefully we can begin our road to recovery. Or at least some relief for her.
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I hope the institute does get back to you quickly!! Things will work out and kids are way tougher than we give them credit for. She WILL be ok and so will you!! I hope you get feeling better soon!!! *hugs*
ReplyDeletehi kendall's mom
ReplyDeletei have been everywhere with my chiari including the chiari institute. i was very fortunate to learn about dr. xiao di at the cleveland clinic in ohio. he performs an endoscopic surgery. the recovery is 1-3 days in the hospital. i wish i could get the word out to everyone on what a blessing this man is. my surgery is on dec 15th.
in my opinion we would have saved a lot of pain and time if we had learned of him first.
hope this helps
andrea